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We are the Jenkins family, and we have two boys with a rare genetic disease called cystinosis.  We live in Salt Lake City, where Stephen is training as an internal medicine physician.  We love hiking, going to the zoo, playing baseball, making family movies and acquiring new pets.  We currently have a dog, Macey, a goldfish, Mallory, and a turtle, Ingrid Bergman.





Sam’s Hope for a Cure is a non-profit, tax-exempt entity pursuant to section 501(c)(3). Our Federal Tax ID# 45-2705024. We support and promote research that develops better treatments for cystinosis and ultimately a cure. 100% of donations will go to the Cystinosis Research Foundation. Your donation is tax deductible.



Feel free to contact us with any questions.

  • Address: Salt Lake City, Utah
  • Phone: 801-310-9332